Ok, so I'm not very good at blogging! It's been a year and a half since my last post, and this blogsite was terribly out of date. I debated just deleting it, but what's the point? I'll just update it, hoping to get back to it again sooner than 18 months.
Samuel is doing remarkably well! We are so pleased. Here's an overview of what's been going on with our epileptic son. Samuel was having about one seizure per week for quite awhile. Medications weren't working, so we decided to go with the very difficult ketogenic diet for seizures in children. It has a great success rate, but its implementation has been so daunting. Here's what it is in a nutshell: feed Samuel a VERY strict diet of 80% fat, 15% protein and 5% carbohydrates with a limit of 1189 calories per day. This requires precise measurement of each ingredient for each meal and strict control to what is put into his mouth, including toothpaste and chapstick
.We started the diet in October 2010 by admitting Samuel to the University of Utah Children's Hospital for three days while his body adjusted to the extreme changes, and Phil and I were trained on how to prepare his food and manage the diet. The first month was a really tough adjustment for all of us. It is a lot of work for me, and Samuel had to adjust to the extreme limitations on his food choices.
BUT! It's working! Today he is at 11 weeks without a seizure, and just one seizure in the last 18 weeks! We are ecstatic. Samuel is comfortable with the diet now, and I have fallen into the groove of making his meals. What an amazing thing. We are so pleased.
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